ResourcePage

Spinal Cord Injury Websites

Canadian Health Network
www.canadian-health-network.ca
Canada’s national network of health information providers, this Health Canada funded web site provides easy access to reliable health information from over 500 organizations across Canada.

Canadian Paraplegic Association (CPA)
www.canparaplegic.org
The CPA provides links to the Canadian Paraplegic Association (Alberta) (CPA-AB). CPA-AB is a community group with offices throughout Alberta. This organization advocates for disability rights, assists with equipment and accessibility, and provides peer support. An excellent resource.

Facing Disability
www.facingdisability.com

Facing Disability was specifically created to connect families who suddenly have to deal with a spinal cord injury with other people like them. Our website has more than 1,000 videos of family members answering real-life questions about how they cope with a spinal cord injury.

It’s a first-of-its-kind Internet-based effort to collect life experiences surrounding spinal cord injuries and bring them to the world.

Eat Well, Live Well with Spinal Cord Injury
www.eatwelllivewellwithsci.com

Nutrition has the power to help rebalance your body, prevent the development of many common and recurring secondary health issues, and achieve over all well-being. Practicing good nutrition also enables you to enhance your bodily functions, which can lead to greater independence and quality of life.

Canadian Spinal Research Organization
www.csro.com/afterandbeyond/index.html

The on-line Resource Manual provides consumers and their family and friends with information on topics that someone with a spinal cord injury might find useful.

Craig Hospital, Englewood, CO
www.craighospital.com
Craig Hospital is one of the leading spinal cord injury rehabilitation centers in North America. Information on all aspects of spinal cord injury is available. Take the SCI Health Assessment: an interactive assessment of your health which scores your risk factors for certain complications of spinal cord injury.

Dietitians of Canada
www.dietitians.ca
This award winning site features credible nutrition information through many interactive components that help adults assess their food choices and activity patterns.

Letters From the Edge
from-the-edge.net
One man’s account of his experience living with a spinal cord injury. J. Michael Kanouff starts his journal from day one and progresses through different milestones. Well written with witty insight. An excellent read!

Model Spinal Cord Injury System Dissemination Center
www.mscisdisseminationcenter.org
MSCIS collects, maintains and disseminates consumer and professional education materials produced by the MSCIS Centers and Collaborative Research projects in SCI, including a system for uniform reporting and collection of presentations by the MSCIS Centers to all audiences.

National Center for the Dissemination of Disability Research
www.ncddr.org
NCDDR performs research, technical assistance and demonstration activities focusing on the dissemination and utilization of disability research funded by the National Institute on Disability and Rehabilitation Research.

National Institute of Disability and Rehabilitation Research
www.ed.gov/about/offices/list/osers/nidrr/index.html
NIDRR provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. Programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood.

National Rehabilitation Information Center
www.naric.com
NARIC is a leader in providing interactive information to the disability and rehabilitation community, NARIC’s Web puts information into the hands of users through online publications, searchable databases, and timely reference and referral data.

Paralyzed Veterans of America
www.pva.org/res/cpg/sci_index.htm
Excellent manuals on many SCI topics from bladder function to depression, all are downloadable. Presently all downloads are free but there is a rumor that there may be a small charge in the future. The gold standard of consumer information about SCI.

Paraplegia News Magazine
www.pvamagazines.com/pnnews
Paraplegia News, which is published by Paralyzed Veterans of America, is an excellent online resource.

Parents with Disabilities Online
www.disabledparents.net
If you are a parent with a disability, a person with a disability who is planning to become a parent, or a nondisabled partner of a disabled parent, this site is for you. The site contains information, support and resources to parents with disabilities.

PWD-Online.ca
www.pwd-online.ca/
PWD-Online.ca is a Government of Canada website where persons with disabilities, their family members, caregivers and service providers can access a full range of information on disability-related programs and services in Canada.

Sexual Health Network
www.sexualhealth.com
The Sexual Health Network is dedicated to providing easy access to sexuality information, education, mutual support, counselling, therapy, healthcare, products and other resources for people with disabilities and those who love them or care for them.

Spinal Cord Injury Information Network
www.spinalcord.uab.edu
The home page for the Spinal Cord Injury Information Network. This site has information on all aspects of spinal cord injury from psychosocial issues to car/van Modifications. In addition to excellent written information, there are links to PowerPoint Presentations, streaming audio lectures, and more. An excellent resource for information.

Spinal Cord Injury Treatment Centre (Northern Alberta) Society
www.scitcs.org
The Spinal Cord Injury Treatment Centre (Northern Alberta) Society (SCITCS) is a non-profit organization dedicated to helping others help themselves. It is run by a volunteer board and sustained by a dedicated group of volunteers, SCITCS purpose is to promote awareness and create opportunities for people affected by spinal cord injuries to enhance their quality of life. SCITCS provides support to persons with a spinal cord injury through two main facilities:

  • the SCITCS FES Exercise Clinic, located in The Steadward Centre at the University of Alberta, Edmonton
  • the Neurological Unit at the Glenrose Provincial Rehabilitation Hospital Edmonton

 

Sports ‘N Spokes
www.pvamagazines.com/sns
Sports ‘N Spokes is another publication of Paralyzed Veterans of America. This is another excellent online resource.

The Christopher and Dana Reeve Paralysis Resource Center
www.paralysis.org
The Christopher and Dana Reeve Paralysis Resource Center (PRC) is a program of the Christopher Reeve Paralysis Foundation formed through a cooperative agreement with the Centers for Disease Control and Prevention and assisted by the Paralysis Task Force.

Through the Looking Glass
lookingglass.org
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

University of Miami, Rehab Team Site
calder.med.miami.edu/pointis/handbook.html
This site provides access to well written manuals on many aspects of spinal cord injury.